Lysol, Hand Santizer and

 Everyone in my house is sick right now, except me. With three transplants in the house and all on immunosuppressed medication germs are easier to catch. I really hope to avoid catching the families cold. 
We have to be extra careful about germs, because we catch them extra fast and it seems to be double the cold that everyone else had. 
So cross your fingers that I do not catch this cold :P I especially do not need a cold being on dialysis and everything else that my body is going through.

Wondering

I think alot about how its gonna be when I get this second transplant. Its been twelve years since my last one, and I'm sure procedures have changed since then. I remember being in the ICU and being weighed in a hammock type strap because I couldn't walk yet, lol felt like a giant whale being lifted out of the water haha. I remember the ganciclovir antibiotic stinging as it went through the IV and then through my veins, I wonder if they will do that again, and if it will hurt as much. I remember being embarrassed because I could not read my new kidney and my bladder control was horrible, 13 and peeing my pants, how embarrassing, I wonder if my bladder control will be a lil more controlled . I wonder if my scar will be as big as the last.I remember shocking the docs as I started walking three days after surgery.One determined lil princess I was...I mean I AM :p I wonder if I will be as strong as last time. I wonder so much of how different it will be second time around in good and improved way. I know in my eyes this will be a piece of cake, because it beats doing what I have been going for the last year. 

Draggin

Just taking it one day at a time. Urg these doc are draggin their feet on getting all the testing done for my aunt, and the whole transpant process.....trying to be patient.

Learning Patience

 Today mom and I spent the day with my Aunt at the hospital while she got more donor testing done.She had to get infused with some sort of IV dye, and then every hour for four hours get blood draw, eeks! shes brave. The blood tests are to check to see how much of the solution is still in her body and how it is filtered through the kidneys. 
So we spent the day running back and fourth to the lab. We should get some results in about two weeks. Patience, patience. Everything will come into place when the time is right. <3

World Kidney Day- March 8th

World Kidney Day was today. Happy Kidney Day!. urg well I have been tired alot more, just because of med changes and adding an extra half hour to my treatment time. I thought I was going to have to have surgery this past week because my dialysis port possibly had an infection. thankfully they gave me antibiotics and it cleared whatever was going on. Im so relieved I really did not want to have to get another chest port in, be sore for days and possiably bleeding and urg, just having to go through another procedure.I mean I know its a piece of cake but still the fact that Id have to go through another procedure :(.  Other than staying at home and being sleepy alot, I have not done much. My energy is just sucked out of me from any little activity. 

Transplant Scars-brother and me :)

As of today the organ waiting list is 113,307. Thats an insane number for the United States alone. I'm so thankful to my mother who was my first donor, as well as my younger brother who received a kidney from an Aunt. We could have had to wait years if we did not have a living willing donor. People wait 6 to 8 years before their number comes up on the list.Soon though hopefully I will get a new kidney. God has a plan, not sure what it is but hes got one. Its getting late, and I really should try to sleep. Much love and happiness

Long Hall

Iv been typing and retyping this piece. Iv been up and down lately with feeling fatigued and achy and just all sorts of little things still due to dialysis.I was sitting in dialysis the other day, and in the chair next to me there was an old woman getting treatment and her husband  was there sitting with her. I know that us as patients have to be strong with what ever we are going through, but the people that really stand by and see us through whatever maybe in our path those people have to be just as strong. Finding a love that strong is rare. To find someone who will watch you at your lowest and even when they it all, they put on a strong face for your sake. And sadly people walk away because they cannot handle what you have to go through but then again there will be that one love who will. I haven't met that person yet but someday.In the meantime I have my wonderful family who stands by me through all this crazyness. Not very many people have someone who sits with them for the 3 to 4 hour treatments. I'm really thankful to have my parents stick by me through it alll <3