Thursday, May 31, 2012

92,488

As of today there are 92,488 people in the United States waiting for a kidney. Can you believe that?! Think about all the people who have two perfectly good kidneys, and you only need one to live.
the blood being cleaned 
 Iv been on dialysis a year now, and Iv talked to many others in the same situation.. dialysis...but theres one things that's different, most of them have decided to stay on dialysis for life rather than try for a transplant....Scared of transplant. Somehow they have a gruesome picture of transplant process. Not only is the surgery tolerable, its means so much more. It means no more fluid or diet restrictions.Means not having to spend hours of your life on a machine, and having more health issues. I'm not saying everyone is like that choosing dialysis for life over transplant, but there are that handful. 
As for being an organ donor, its one those things that if I could i would do it in a heartbeat. If more people were organ donors the waiting lists wouldn't be so long. My father, brother and I all had living family donors.
Anyway enough of my ramble about organ donation, but do give it a thought :p. 


      As for my progress, well dialysis is doing well, I think we finally figured out for sure my limit as to how much fluid we can pull off in one treatment. Iv had to decrease my fluid intake again because I am not peeing as much, and the more fluid that stays in me causes more problems. I am not like most of the other on dialysis, I am very petite and I mean very lol, so every lil once effects me unlike most people who can go kilos over in fluid. Believe me I know I cant. A few weeks ago I over drank by 2 kilos and they tried to pull it all off but I ended up puking not stop until they gave me a nausea medication that made me feel like I was now intoxicated lol. Urg I will never over-drink fluids again....course thats easy to say, and I really do try to stay on task with watching my fluids but sometimes, I just really want that extra glass of iced tea. Im doing good though, always a lil over but never like that one horrible time. 
Went to UCSF yesterday for a full transplant evaluation.Just have to wait to hear back from the doctors on what the next step is. Other than that nothing else to report, blood pressure is still not under control.


O! I am doing two 3 mile walk a thons in weekends to come :) very exciting. They are both for kidney disease, plus it helps me stay in shape, AND show people that just because I am on dialysis doesn't mean I can not be fit and energetic. 
SO I think I caught up on all thats happeneing. I really will start writing again on a every other day basis.<3

Friday, May 11, 2012

Bad at This

Wow, I have been getting really bad at keeping up with my blog :p Iv been in and out of the hospital with major blood pressure issues. A few weeks ago it was like 222/140, even after taking all five of my blood pressure medications. Dialysis has been rough, the doctor is has changed my fluid goal on dialysis, and added more medications. Things are going so slowly, its already been a year now that I have been sick, I cant even believe that. I have so much to say for updates,but Ill have to wait until tonight, because my energy is not the greatest during the day until about 3oclock. I hope all is well, and that everyone is enjoying the sunshine :)