Fighter for life

Waiting waiting waiting......................Im getting really good at patience...kinda.....sitting on dialysis for 3 hours ......that takes patience............waiting for a kidney takes patience...WELL to some point. Waiting in sense. BUT still working to get the word out that I need help. And thats what you have to do. You cant just wait and wait and wait for the doctors to fix it, because they wont work as hard as you to save your life. They will do what comes easy the surgery, but they don't have to be you and be on dialysis and take meds and be on a special diet so they don't really have me as a priority. They have tons of other people that want the same thing.. YOU are you best advocate.
Speak up for yourself and be aware.
Im one that really shocks the medical staff because I ask lots of questions and sometimes I tend to put the doctors in their place and make sure I am herd.

I doubt you will meet many surgeons that have the patient arguing with them the OR about where the placement of the chest cath is going to be LOL only for me to win.
And my IV rule with nurses is two sticks if you do not get it in within two sticks then your out and I get a whole new nurse.
Or how about the time I was 13 when I was in the hospital for more than a month and then finally the doc said I would be released withing the next few days and he kept telling me that over and over and I finally got fed up and told him you are not allowed to come in my room until you have my discharge papers. HAHAH
But seriously the only advocate for yourself is yourself; its also good to have a good entourage of support to back you up in case your are too sick.

I have quite a few people in process to see if they are a match for me. The nurse says its very shocking to see the amount of people that have come fourth for me. Well that's cause I am very determined. I do not want to stay on dialysis one day longer than I have to.

I have talked to some people waiting for a transplant and they are too afraid to ask anyone even friends for a kidney. Not me...I need help and getting a kidney is the only way. If I could grow a kidney tree in my backyard and fix the problem myself I would lol,but life doesn't work that way. Sometimes you cant save yourself.

So tell everyone to be an organ donor and they may save your life, and maybe they wont match. But it could help them to think maybe they can save someone else.
95,307 are waiting for a kidney! Certainly is everyone who has two working kidneys gave ONE away that number would not be that high.....

MIA

https://www.facebook.com/marinaneedsakidney

Wow so its 2013...ya I was away from blogging for too long sorry.Time has just been crazy busy. In a good way for the most part.Well aside from still waiting and waiting for that call about a match.
So ketchup...December was just full of family time and enjoying Christmas...Donor status...well I had a friend working on the prcoess. He got really far and we all had a feeling he was going to be the one because he had gotten so far in the process.. We came to learn he was not a match :( So the search continues. 
The key is just to keep on thinking IT WILL HAPPEN. And to just think happy thoughts... lol I know that sounds kinda silly. But its the truth. And I know I keep repeating that in my entries. But I want people to really think about that.

In case you forgot what a
dailysis machine looks like :P

Dialysis is going pretty good, well good enough for a dialysis treatment. Iv gained weight so the doctor upped my dry weight. :) which is good means I gained actual weight not water weight..water weight what is that you ask? Well since my kidney doesn't work and I dont pee. Every liquid I consume just keeps adding up in my body. I am only allowed to have about a liter of fluids in-between dialysis treatments. So the dry weight is my actual weight AFTER they pull off all the extra fluids. If someone goes way over their fluid limit that can cause more health problems; heart problems, blood pressure problems etc. 
:( I hate having to depend on a machine to keep me alive. Things will be soooooooooo much better after I get a kidney. 
January went by in a flash...And we are now in February .. so I started a new project. I am making blankets for other dialysis patients :) I really want to get the word out about what I am doing.I need donations of fabric and sewing materials and monetary so that I can keep making blankets. 
I think I am caught up on whats going on...lol ya not much...dialysis...dialysis....sewing <3 

Much love