5,400 people....

5,400 people are diagnosed every year with FSGS (focal segmental glomerulosclerosis) kidney disease. My brother and I were both diagnosed as we turned 13. FSGS there is no cure and they have no idea how it occurs. FSGS is very different in every case, some are diagnosed at an early age, some are able to be stable just on medications without going the route of transplant. 
In my brothers and my case we had no idea, it hit us like a wave, one day we were fine the next day I was near a stroke at  13. Doctors have not what causes FSGS and are working hard to improve treatment and find a cure for FSGS. 
Today my family and I walked a walk-a-thon with the local Nephcure chapter. Its so wonderful for people enduring similar situations to get together like that and  raise awareness and donations. 
My family walked together, sharing our story with others, our story usually shocks people because there are three of us that have had  transplant. My Aunt who donated a kidney to my brother, walked with us. The weather was so beautifully perfect for the walk. 
I did really well with walking about 2 miles, my energy was upbeat, course the minute we got home I zonked out for a cat nap :p We had a lil family BBQ after and enjoyed just being together. I really love spending time with my family it helps me cope really well with all the things I am going through. And next week we are all walking the National Kidney Foundation walk. 
Well my dialysis treatment is about over, so Ill bid you adieu. <3